This is the job: Love on a kid who needs love,
incorporate them in your daily routines, feed them well, clothe them well,
treat them like family. This child is
functioning like family, and with that comes all the intimacy of family. She is intimately a part of our lives—I know
that touching her ears means she’s tired.
I know how to present her food to get her to eat well, the right
distractions to get her to take all 14-16 breaths with her inhaler mask
on. She studies me as I put on makeup,
she follows me to the bathroom, she plays in the dirty laundry, and bathes with
our daughter. We see each other at our
best and worst. In only 4 months, we are
intimately connected. We feel fiercely
protective of her. I find assertiveness I
did not know I had when pushing to get in at the doctor or convincing the
doctor that I know what her symptoms mean.
And yet, we go to court, and we are not “involved
parties,” and so we sit in the lobby and wait.
Wait for objective, detached people to determine this little girl’s
outcome, based on information we have given them. We are not privileged to any information about
other family members, custody issues, placement decisions, any details that
will determine when and where she goes. We
are in the dark. We got into this to advocate
for these voiceless children, to be their voice. To get their needs met and ensure they do not
slip through the cracks. And I myself have
never felt so voiceless. We are asked to
share the most personal things of our life, and yet remain detached. To have a reality check every week when I drop
her off to Mom, and realize I’ve just been playing house, acting as a
babysitter. My opinion, my way of doing
things with her, is good only for today.
All the progress we’ve made with her eating, her development, her
ability to attach to an adult and learn her needs can be met… will any of that matter??? It’s hard to feel empowered and care for her
well when it feels like it might all be lost…the things I‘ve fought for might
just be dismissed by someone else who doesn’t seem them as important.
So how do I stay fully engaged in her care, in meeting
the day to day needs, without knowing the outcome? Without knowing if the things I am fighting
for now will even matter? This, too, is
the job. I don’t know how to do life in
the gray. How to carry on day to day,
when so many things in our life are up in the air. When I am scared about our family plan and
sibling spacing and how it will all turn out.
Truth be told, I want to sit down and make a plan and take control. Somehow I need to figure out how to keep
living for today not knowing much past tomorrow. I need to lay down my ability to plan and,
when she needs new shoes, just go buy new shoes. Not because I know how much longer she’ll be
with us and so it’s practical because she’ll get a good amount of use out of
them. But because I can make my
decisions from what I know today only. I
can love her to the best of my ability for today only. We are in this for
little T, and have not a clue what that means.
I tell myself that what we’re doing matters—that we’re planting seeds in
her that will stay with her. We have no
certainty, no plan, no answers…we have hope.
Therefore the Lord waits to be gracious to you, and
therefore he exalts himself to show mercy to you. For the Lord is a God of justice; blessed are
all those who wait for him. Isaiah 30:18
Praying for the Lord’s justice and mercy for sweet little
T, and our perseverance in anticipation of his graciousness.